The U.S. Senate has unanimously approved a resolution designating February 28, 2026, as “Rare Disease Day.” The measure was introduced by Senators John Barrasso (R-Wyo.) and Richard Blumenthal (D-Conn.), with the aim of raising awareness and providing support for the more than 30 million Americans affected by rare diseases and disorders.
Children make up a significant portion of those impacted by rare diseases. The resolution also expresses support for national and international research to develop better treatments, diagnostics, and cures.
Senator Barrasso stated, “Rare Disease Day recognizes our commitment to patients living with rare diseases. It also supports the need to expand access to life-saving treatments and invest in future cures. For folks living with a rare condition, it can often leave them feeling lonely and overwhelmed. Since my time as a doctor, it has been a priority of mine to help these patients find the treatment and support they need. I am proud to join this bipartisan effort to recognize and support all Americans living with rare diseases.”
Senator Blumenthal added, “This resolution honors the many Americans bravely battling rare diseases and reaffirms our commitment to improving their quality of life. I’m incredibly inspired by the strength and resilience of the individuals fighting rare diseases, and I look forward to continuing to promote innovative research and treatment and to improve access to life-saving care.”
Other co-sponsors include Senators Roger Marshall (R-Kans.), Amy Klobuchar (D-Minn.), Tim Scott (R-S.C.), and Cory Booker (D-N.J.).
